Thursday, September 23, 2010

Fall 2010







Well just as we thought Paiges hair was growing in Most of it has fallen back out.
Its ok the only problem we are having right now is the colder air and her head so we are on the search for a few more hats. She has one that her Ohma(my mom) made her that she loves, but of course it doesnt match every outfit ;) Here are some pictures of her and her brothers from yesterday when we were outside playing Mommie of course had to take some photos.

Wednesday, September 15, 2010

Update





So as Paiges hair grew in most of it fell back out. So we are back to square one again. Her first appointment with Riley childrens hospital is the 28th of this month. We have to be there at 8:45am and it takes about 3 -3 1/2 hours to get there YIKES..all for probably a 30 minute appointment :S
but Paige is in good spirits. People treat her so nice and kids are always coming up asking where her hair is and saying how cute she is. I really appreciate when people ask instead of constantly stare. We all love Paige pooh so much!

Thursday, July 8, 2010

A Big thanks!!!

To
Louis Musick and
Tasha,Mike Hewlett and family
for donating twords paiges first wig :o)
just one two steps closer to getting her what she is wanting :o)
you have no idea how much i appreciate your support!

Wednesday, July 7, 2010

An idea....

So i seen that on the alopecia site there is a camp for kids with alopecia i soo wish we could take paige there, Im not sure even where it is, but im sure its too far to actually drive a day...but i seen you can actually have your own events if you put it together and get the donations and what not for it..how cool would it be to have a camp around the area and meet others like miss paigie pooh! So I might be trying to talk to the alopecia foundation on how to get set up to start trying to hold one :o) wish me luck!

Wednesday, June 30, 2010

Paige
















Over the last year Paige has had some real challenges but she has stayed positive through most of it. here are pictures of her over the last year

Sunday, June 27, 2010

Visiting ohma!

We have been visiting my mother this will be the third day. The kids are having sooo much fun! We are in constant reminder to keep sunblock on paiges head as it burns so easy. We have tried looking for one of those swimming caps but have not found one yet that will fit her. Anyone know of where i can find a childs swimming hat? Paige was excited to talk with my friend Erin from Utah on the phone yesterday. The kids call her grandma Erin. They love her sooooo much.

As for Paige she hasnt been feeling up to par lately the last few days shes been not feeling totally well. I wonder at times if alopecia compromises there immune system. I know not having nostril hair has to play a part in getting sick more often then a normal person as that catches the germs and if they have no hair in there nose what is there to help? You can replace head hair, fake eyebrows and eyelashes but not the nose...
anyway here is my small post for the day. I have tons of pool pictures from yesterday to put on here when i get back.
Have a nice day everyone!

Saturday, June 26, 2010

What is alopecia?

Overview
Alopecia areata is a condition that causes round patches of hair loss.
Symptoms
•Loss of all scalp and body hair (alopecia universalis)
•Loss of all scalp hair (alopecia totalis)
•Roundish patches of hair loss on the head
•Smooth, hairless scalp in the affected areas
Hairs that look like exclamation points are sometimes seen at the edges of a bald patch.
Treatment
No fully effective treatments are available. Typical therapy includes:

•Steroid injection under the skin surface
•Topical corticosteroids
•Ultraviolet light therapy
Irritating drugs may be applied to hairless areas to cause the hair to regrow.
Causes
The cause of alopecia areata is unknown. About a fifth of people with this condition have a family history of alopecia. Alopecia areata may sometimes occur with autoimmune diseases.

Forms of alopecia include:

•Alopecia totalis -- complete loss of scalp hair
•Alopecia universalis -- total loss of all body hair
Tests & diagnosis
On occasion, a scalp biopsy may be performed. Several blood tests may be done, because alopecia areata may occur with autoimmune conditions.
Prognosis
Full recovery of hair is common. However, some people may have a poorer outcome, including those with:

•Alopecia areata at a young age
•Eczema (atopic dermatitis)
•Long-term alopecia
Complications
Permanent hair loss is a possible complication of alopecia areata.